One thing a day: an interview and then nothing

On the morning of Wednesday October 24th, I had a meeting for an internship at a museum. I had contacted the person responsible, exchanged some emails as to what sort of internship I wanted, and was told that they were excited to meet with me to talk about a mutually beneficial arrangement.

So far so good, except this week has been particularly difficult in terms of fibro fog *.

The previous night, I had to cancel a date with Marc because I was so overwhelmingly fatigued that I could barely form sentences. I had gone to sleep early, had a fitful night, woke up with a splitting headache, and faced the prospect of an interview for a position I was genuinely excited about.

That’s one of the (many) frustrating things about fibromyalgia. It robs you of the ability to fully get excited about something, to deeply delve in what you are passionate about. 

Continue reading “One thing a day: an interview and then nothing”

Of blurry beginnings

Today, I can’t wear my glasses.

The pressure of the frames on my ears and my skull is too much, and so they are sitting on the desk in front of me. I am squinting hard at the computer screen to make out the words I am typing, as my eyesight is… not good. I need those glasses. Yet putting them on causes me so much pain that any tenuous thought I could otherwise grab on to just escapes me.
Hello, my name is Rachel and I have fibromyalgia. On good days it just feels like I didn’t sleep enough and maybe overdid it slightly at the gym. On bad days I can’t even think and the pain makes it impossible to move. Despite all this, I am determined to finish my Ph.D. in anthropology at Arizona State University while still maintaining a good life balance with my friends and significant other, Marc.
I will be using this blog to chronicle what it’s like as an academic with fibromyalgia. While academia is the primary focus of my life currently, fibromyalgia of course affects all aspects of my life, so this will be mirrored here as well.