My diagnosis journey

I was officially diagnosed with fibromyalgia on November 27, 2017. It was the culmination of a long semester full of frustration and self-loathing. In many ways getting the diagnosis was just the start of the journey, since now that I knew what I had, I had to figure out how to manage it. I feel that I am finally making headway on that, over a year later.

Image may contain: Rachel Luchmun, glasses and close-up

This picture was taken on the day of my diagnosis at the doctor’s office while waiting for the rheumatologist to come in. I was wearing a full face of make up and a professional-looking dress. I look at that picture and I try to find evidence of how incredibly exhausted I felt. Of course there’s really nothing there, because fibromyalgia is an invisible illness. There was really nothing wrong with me except an unrelenting fatigue, a fatigue that no amount of sleep would conquer, a fatigue that usually put me out of commission by mid-morning every day. My mind was foggy and I could hardly comprehend the work that was in front of me. The field work I had to do sapped all the energy out of me and my brain felt like it was filled with thick cotton. But there was nothing wrong with me, so I pushed and pushed and pushed through until something had to give.

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Of blurry beginnings

Today, I can’t wear my glasses.

The pressure of the frames on my ears and my skull is too much, and so they are sitting on the desk in front of me. I am squinting hard at the computer screen to make out the words I am typing, as my eyesight is… not good. I need those glasses. Yet putting them on causes me so much pain that any tenuous thought I could otherwise grab on to just escapes me.
Hello, my name is Rachel and I have fibromyalgia. On good days it just feels like I didn’t sleep enough and maybe overdid it slightly at the gym. On bad days I can’t even think and the pain makes it impossible to move. Despite all this, I am determined to finish my Ph.D. in anthropology at Arizona State University while still maintaining a good life balance with my friends and significant other, Marc.
I will be using this blog to chronicle what it’s like as an academic with fibromyalgia. While academia is the primary focus of my life currently, fibromyalgia of course affects all aspects of my life, so this will be mirrored here as well.